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Bleeding disorders are a group of conditions of the blood clotting (coagulation) system, in which bleeding following an injury is prolonged and excessive. Normal blood coagulation is a complex process involving as many as 20 different proteins, which are known as blood clotting factors. When any of these factors are deficient or missing, the process is impaired. For example, factor VIII deficiency is called Hemophilia A.
Bleeding problems can range from mild to severe.Over the last 20 years, significant advances have occurred in the care of people with bleeding disorders. The widespread use of factor concentrates allows people with bleeding disorders to treat bleeds promptly at home, school, or the workplace. Early treatment prevents the crippling effects that internal bleeds can have on the body.
Today, people with bleeding disorders can live entirely normal lives.Even though progress in the treatment of people with bleeding disorders has been made, there are still many challenges and difficult choices families affected by bleeding disorders face every day. Treatment with factor concentrates is very expensive and financial issues can interfere with or even prohibit adequate care of patients with bleeding disorders. Furthermore, there are several medical complications, which can make the life with a bleeding disorder very difficult.
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Board Meeting
July 10, 2009; Time to be announced
Meeting will be held at the Family Education Weekend. Please see a board member for more information.
Events Committee Meeting
For more information contact Nancy Phelps @ nancyjphelps@yahoo.com
Camp Notaclotamongus
Camp was great!! Hope to see you next year, when "Survivor" will be our theme. Dates to be announced. Be there to Outwit, Outplay and Outlast!!
For more information, contact Danielle Flores @ daflores@sbcglobal.net
Golf Committee Meeting
Next meeting will be at the FEW. Please contact Greg Price, 2009 Chair, for more information greg@bluebonnetpromo.com
Legislative Committee
For the latest updates from the Legislative Committee, please click on "News." For more information contact: mary_c_fleming@sbcglobal.net
Family Education Weekend 2009
July 10-12 at The Resort at Port Arrowhead, Ozark, MO. Youth Events this year include a Wii Tournament for all ages. Three Nintendo Wii's used during the tournaments will be raffled off on Sunday. Our Ladies' Tea will launch Heart II Heart, an opportunity for women living with bleeding disorders to network. Registration for the F.E.W. is going on now. Deadline isJune 10th. For more information, read News, or contact Nancy Phelps at www.nancyjphelps.com.
What's Happening at GHA
Read "News" to learn more about what's going on at GHA.
Support GHA using GoodSearch.com
Did you know that GHA can earn a penny everytime you search the internet? Also, a percentage of every purchase you make online can go to support our cause. GoodSearch.com is a Yahoo-powered search engine that donates half its advertising revenus (about a penny a search) to the charities its users designate. Just go to GoodSearch.com and designate Gateway Hemophilia Association (Ballwin, MO) under "Who Do You GoodSearch For?"
GHA Office
314-482-5973
info@gatewayhemophilia.org
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