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Bleeding disorders are a group of conditions of the blood clotting (coagulation) system, in which bleeding following an injury is prolonged and excessive. Normal blood coagulation is a complex process involving as many as 20 different proteins, which are known as blood clotting factors. When any of these factors are deficient or missing, the process is impaired. For example, factor VIII deficiency is called Hemophilia A.
Bleeding problems can range from mild to severe.Over the last 20 years, significant advances have occurred in the care of people with bleeding disorders. The widespread use of factor concentrates allows people with bleeding disorders to treat bleeds promptly at home, school, or the workplace. Early treatment prevents the crippling effects that internal bleeds can have on the body.
Today, people with bleeding disorders can live entirely normal lives.Even though progress in the treatment of people with bleeding disorders has been made, there are still many challenges and difficult choices families affected by bleeding disorders face every day. Treatment with factor concentrates is very expensive and financial issues can interfere with or even prohibit adequate care of patients with bleeding disorders. Furthermore, there are several medical complications, which can make the life with a bleeding disorder very difficult.
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Board Meeting
February 9, 2010; 5:30 p.m.
Note: Place of meeting, Cardinal Glennon Hospital, Mund Room
Knock 'Em Down for G.H.A. 4th annual GHA Bowling Party Feb 20, 12:00 pm - 2:00 pm. Lakeside Lanes, 1254 Dougherty Ferry Road, St. Louis, MO. All bowlers will enjoy 2 free hours of cosmic bowling, shoe rental & refreshments. Door prizes & 50/50 raffle. Space is limited; contact GHA for reservations: 314-482-5973 .
Heart II Heart Women's Networking Group Need someone to talk to, share concerns, get answers, socialize? Why not join or help a new women's group, Heart II Heart. For more, read the News section of this website. You can also contact Carly Magee at www.bcmagee@htc.net.
Family Education Weekend 2010 (F.E.W.)
July 30 - August 1 at Westport
The FEW 2009 was a huge success! Read all about the 13th Annual F.E.W. under NEWS!
Camp Notaclotamongus
June 9 - 12, 2010. Mark your calendars now and plan to attend camp with us!
Tee Off for Hemophilia 2010
September 20, 2010
Legislative Committee
For the latest updates from the Legislative Committee, please click on "News." For more information contact: mary_c_fleming@sbcglobal.net
What's Happening at GHA
Read "News" to learn more about what's going on at GHA. Check out the article from Nancy Phelps about our Family Education Weekend, and the article from Danielle Flores on Camp Notaclotamongus!
Support GHA using GoodSearch.com
Did you know that GHA can earn a penny everytime you search the internet? Also, a percentage of every purchase you make online can go to support our cause. GoodSearch.com is a Yahoo-powered search engine that donates half its advertising revenus (about a penny a search) to the charities its users designate. Just go to GoodSearch.com and designate Gateway Hemophilia Association (Ballwin, MO) under "Who Do You GoodSearch For?"
GHA Office
314-482-5973
info@gatewayhemophilia.org
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