Events

Mar 26-28

HFA Symposium & GHA FEW

Location: Hyatt Regency St. Louis at the Arch
315 Chestnut Street. Saint Louis, MO 63102

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Symosium

Agenda    Click here for more information       Program

Online pre-registration for HFA Symposium 2015 is closed. Adult attendees and exhibitors may register on-site. There is NO childcare registration on-site; all children had to be pre-registered online.

Apr 12

Camp Open House

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052
1:00 p.m. to 3:00 p.m.

CAMP PRE-PARTY!

This is the perfect time for future campers to gather for a relaxing and fun camp pre-party at Camp Notaclotamongus. New families interested in our camp will have the opportunity to experience our facility, our staff, activities, and meet us and see what we have to offer your children. Some “experienced” campers will also be there to answer your questions. Lets gear up for the summer ahead. Bring the family, or come alone, but please come! Click here for additional information. 

Please RSVP to GHA at: info@gatewayhemophilia.org Questions?  E-mail or call Bridget at: 314-482-5973

Apr 15

Mens’ Group Event

Location: Mike Shannon's Restaurant
620 Market St. St. Louis, MO 63101
5:00 p.m.

*This adult men’s group event is open to DADS that have a child/children with a bleeding disorder in addition to MEN WITH A BLEEDING DISORDER, attendees must also be 18 or older.

 

Mike Shannons

Speaker: Sue Geraghty, RN         Topic: HERO

Explores psychological issues in hemophilia

Different takes on sports and activities

Paying it forward: how to be a HERO to others with hemophilia

Space is limited and will be considered on a first come, first serve basis (as long as the registrant meets the criteria above) RSVP ASAP to info@gatewayhemophilia.org or (314) 482-5973.  Event Flyer

Apr 15

Men’s Group Event

Location: Busch Stadium
700 Clark Ave, St. Louis, MO 63102
7:00 p.m.

*This adult men’s group event is open to DADS that have a child/children with a bleeding disorder in addition to MEN WITH A BLEEDING DISORDER, attendees must also be 18 or older.

brewers_cardinals

Space is limited and will be considered on a first come, first serve basis (as long as the registrant meets the criteria above) RSVP ASAP to info@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Apr 16

Constructive Conversations

Location: Sao Asian Bistro
2800 17th St, Marion, IL 62959
6:00 p.m.

 

 

 

An Educational Program 

Featuring Gladis Murillo, RB, BSN, Nurse Educator Specialist

Gain an understanding of how motivational interviewing helps individuals living with hemophilia interact with caregivers and health care providers. Examples of effective conversations are presented.    Event Flyer

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 17

World Hemophilia Day

Location: Chase Park Plaza - Zodiac Room on the Starlight Roof
212 N. Kingshighway, St. Louis, MO 63108
6:30 p.m. to 9:30 p.m.

Please join us as we raise awareness for hemophilia and honor progress in our community!

WHDFor more information click here!

RSVP to info@gatewayhemophilia.org

or (314) 482-5973

 

May 02

Hemophilia Walk

9:00 a.m.

 

 

Logo

Click here to REGISTER 

The day of the walk you may choose the 1 mile or 5k walk/run!

Jun 03-06

Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

2015 Medieval Times Camp

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting. Click here to register!

2012 Camp Staff

2012 Camp Staff

Aug 13-15

NHF Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 67th Annual Meeting in Dallas, TX, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Dallas, TX, August 13-15, 2015.

 

NHF’s 67th Annual Meeting Info

 

Aug 20

Wine Tasting Fundraiser

Location: Farotto's Italian Restaurant & Pizzeria
9525 Manchester Rd, St. Louis, MO 63119
6:00 PM to 8:00 PM

GHA will hold a wine tasting event on Wednesday, August 20. All proceeds from this event will benefit our educational scholarship fund for our college age members with a bleeding disorder who are furthering their education. Event Flyer 

 

Sep 12

GHA BBQ

Location: Tower Tee Driving Range
6727 HEEGE RD – St. Louis, MO 63123
12:00 p.m. to 3:00 p.m.

   ANOTHER GOOD OLD FASHIONED BBQ, BASEBALL & GOLF!

GHA INVITES YOU TO COME ENJOY A DAY OF FUN, EDUCATION, FAMILY AND FRIENDS!!!

ENJOY SOME DELICIOUS BBQ,   DRIVE SOME GOLF BALLS  and GET SOME BATTING PRACTICE & HITTING INSTRUCTION                Event Flyer

Sep 14

Tee off 4 Hemophilia

Location: Quail Creek Golf Club
6022 Wells Rd, St Louis, MO 63128

This golf tournament is the main fundraiser supporting GHA activities. GHA hosts conferences, funds research, and supports political advocacy and the bleeding disorder community. This event helps fund Camp Notaclotamongus, a summer camp for kids affected by bleeding disorders that teaches self-infusion of factor products and provides safe, physical activities. Register 

 

Event Flyer

Nov 07

Trivia Night

Location: Richmond Heights Community Center
8001 Dale Ave, Richmond Heights, MO 63117
7:00 p.m. (doors open at 6) to 10:00 p.m.

Dec 20

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM