Events

Dec 12

Tilles Park Winter Wonderland

Location: Tilles Park
9551 Litzinger Road St. Louis, MO 63124.
5:00 p.m. to 10:00 p.m.

GHA will provide volunteers to collect the admission fee from each car at the end of the Winter Wonderland light show. Thank you to our volunteers!

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Dec 17

Our Time to Give Back

Location: Operation Food Search
1644 Lotsie Blvd St. Louis MO
9:00 a.m. to 12:00 p.m.

Join Us in a Celebration of Giving Back

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GHA and Biogen invite you to join us for a day of giving back to the people and places where we work, play and live during this season of giving.
As we approach the holiday season, let’s donate the precious gift of time. Join us for a day of generosity, and help us serve the communities that give us so much.
PACKING MEALS AT OPERATION FOOD SEARCH (Please note children must be age 10 or older to participate.)
This volunteer event will provide an opportunity to give back alongside others in the hemophilia community. Event Flyer

Dec 18

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP to info@GatewayHemophilia.org or (314) 482-5973

Jan 01

2017

Check out our events for 2017 below!

Feb 28

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP to info@gatewayhemophilia.org, if you are interested in attending the training or have any questions!

Teen Advocacy Training: Making a Positive Impression. The teens will learn about the importance of personal advocacy through a variety of situational discussions. Consider how and when to set boundaries and say ‘No’ as well as advocating for your health at school, at your HTC, and throughout life in general.

Red Tie Challenge

Mar 01

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

MO State Capitol

        Register here for Missouri Advocacy Day

Mar 01-31

National Bleeding Disorders Awareness Month

March has been declared national Bleeding Disorders Awareness Month. Read all about this important designation and how to take the Red Tie Challenge to show your support.

Mar 08-10

Washington Days

Make your voice hear at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques            Register Today

Washington Days

Apr 06-09

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

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Click here to register and for more information.

 

Apr 17

World Hemophilia Day

Please join us as we raise awareness for hemophilia and honor progress in our community!

WHD

 

May 06

Hemophilia Walk

9:00 a.m.

 

Click here to REGISTER 

The day of the walk you may choose the 1 mile or 5k course!

Jun 07-10

2017 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2016 Military Theme Camp

Camp Photo

Aug 17

Wine Tasting Fundraiser

Location: Farotto's Italian Restaurant & Pizzeria
9525 Manchester Rd, St. Louis, MO 63119
6:00 PM to 8:00 PM

tasting-wine Farottos logo

 

 

GHA will hold a wine tasting event on Thursday, August 17. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

 

Aug 24-26

NHF’s 69th Annual Meeting

Location: Hyatt Regency Chicago
151 East Wacker Drive Chicago, Illinois, USA, 60601

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 69th Annual Meeting in Chicagi, IL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Chicago, IL August 24-26, 2017. Scholarship Application

 

NHF’s 69th Annual Meeting Info