Events

Sep 29-02

Great Plains Region Women with Bleeding and Clotting Disorders Annual Retreat Weekend

Location: Camp Allen
18800 FM 362 Navasota, Texas 77868

YOUR JOURNEY BEGINS HERE!!!    The Great Plains Region Annual Women with Bleeding and Clotting Disorders (WwBCD) Women’s Retreat and Girls Camp is scheduled for Sep 29 – Oct 2, 2016 at Camp Allen in Navasota, Texas.  They will begin accepting registrations in June for this great weekend adventure.  Transportation, lodging, and meals are provided to all attendees.  The only cost to attendees is a small registration fee of $50 per person. Retreat registration will be open to females ages 18 and up who have been formally diagnosed with a bleeding or clotting disorder.  Camp registration will be open to females ages 12 – 17 who have been formally diagnosed with one of the following diagnoses: Von Willebrand’s Disorder, Congenital Thrombophilia, Hemophilia, Platelet Disorder, or Rare Bleeding Disorder.  All attendees must reside in one of the eight states in the Great Plains region (Texas, Louisiana, Oklahoma, Arkansas, Kansas, Missouri, Nebraska, Iowa).  The women’s retreat and girl’s camp are held concurrently on the same property however they will be at different locations on the property.  All girls camp attendees are required to have a female parent or caregiver attend the women’s retreat.  Registration will be done online again this year through CampDoc.  Registration will officially open on June 1st and will close on July 8th.  Space is limited so we encourage all interested females to register early.  Once we reach our capacity, applicants will be put on a waiting list.

The annual event will allow women and girls to participate in several educational sessions, entertaining and relaxing activities, all while enjoying time together and some well earned “me” time.  The weekend will provide the perfect opportunity for rekindling existing friendships as well as creating new ones.

Potential attendee(s) may contact a representative listed below to receive the link to CampDoc for registration purposes as well as receive answers to any questions that they may have.  If you should require any additional information or have any questions/concerns, please feel free to contact Melissa Reifke, Registration & Bleeding Disorder Track Coordinator 281-686-7020 lsc_she2013@yahoo.com.

State Contact: Missouri – Tonya Brown

Sep 30-02

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with bleeding disorders between the ages of 7-18 to the Gettin’ in the Game event which will take place September 30 – October 2, 2016 in Phoenix, AZ. The event will include competitions in baseball, golf and swimming. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf, baseball, and swimming, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). All applications must be submitted by Monday, August 15, 2016.

For more information click here.

Oct 02

GHA Membership Meeting

Location: Kilroy's
720 S. 7th Street, St. Louis, MO 63102
11:30 a.m. to 1:30 p.m.

The members of GHA are invited to gather for an update on GHA, education, getting to know one another, and fun while developing community. This is for families affected by a bleeding disorder. After the membership meeting registered attendees will receive a complimentary ticket to the Pittsburgh Pirates / St. Louis Cardinals baseball game.  at 2:15 p.m. The ticket includes a voucher for a hot dog & soda at the game. Event Flyer

St.-Louis-Cardinals-vs-Pittsburgh-Pirates

Oct 22

The Coalition for Hemophilia B Meeting

Location: Marriott St. Louis Airport
10700 Pear Tree Lane, St. Louis, MO 63134
8:00 a.m. to 4:00 p.m.

Join Coalition B for their FREE Coalition for Hemophilia B Meeting in St. Louis, MO

hemophilia

Contact

Christian Villarreal
The Coalition for Hemophilia B
347-949-9696
chrisv@hemob.org

Nov 05

Trivia Night

Location: Richmond Heights Community Center
8001 Dale Ave, Richmond Heights, MO 63117
7:00 p.m. (doors open at 6:00) to 10:00 p.m.

Reserve your table NOW! Advance registration and payment is REQUIRED

$200 per table of eight ($25/person)

 Beer, soda and snacks provided

Call GHA at 314-482-5973 or info@gatewayhemophilia.org      Event Flyer

Dec 18

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Jan 01

2017

Check out our events for 2017 below!

Mar 08-10

Washington Days

Make your voice hear at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques            Register Today

Washington Days

Apr 06-09

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Click here for more information

 

Apr 17

World Hemophilia Day

Please join us as we raise awareness for hemophilia and honor progress in our community!

WHD

 

Jun 07-10

2017 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2016 Military Theme Camp

Camp Photo