Events

Sep 09-30

Inspiring Shots Golf Clinic

Location: Quail Creek Golf Club
6022 Wells Road St. Louis, Missouri 63128
10:00 a.m.

Learn how to golf or improve your golf game with this 4 week course! Connect, educate, and get hands on golf instruction.

FREE for people with bleeding disorders & caregivers 18 & older! Golf clubs provided during the lesson if needed.

Two participants will win a paid trip to attend CSL Behring’s 2017 Junior Nationals Championship (JNC) and have the chance to win a $2,500 donation to GHA! First come first serve. Register with GHA at (314) 482-5973 or info@gatewayhemophilia.org. Event Flyer!

Sep 25

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Lunch provided by pappys

Oct 01

GHA Membership Meeting

Location: Kilroy's
720 S. 7th Street, St. Louis, MO 63102
11:30 a.m. to 1:30 p.m.

The members of GHA are invited to gather for an update on GHA, education, getting to know one another, and fun while developing community. After the membership meeting registered attendees will receive a complimentary ticket to the Milwauke Brewers / St. Louis Cardinals baseball game.  at 2:15 p.m. Tickets include a voucher for a hot dog & soda at the game. Event Flyer

RSVP by Sep 15 314-482-5973 or info@gatewayhemophilia.org

*This program is for consumers and caretakers of people living with a bleeding disorder within the GHA service area.

Space is limited and tickets will be distributed on a first come first serve basis.

Attendees must attend the membership meeting to receive a complimentary ticket to the baseball game.

Parking will NOT be provided for this event.

Oct 21-22

GHA Teen Hike

GHA’s Teen group will participate in an overnight 7-mile hike at Hawn State Park. This program is open for teens and their siblings ages 15-19. GHA will provide equipment. A meeting with the parents will be held on Saturday, September 9 at Tower Tee at 3:00 p.m. after the GHA BBQ. At this mandatory meeting, we would provide a list of items the teens would need to bring. Please email Bridget at info@gatewayhemophilia.org or (314) 482-5973 if you are interested.  Teen Hike Flyer! Registration closed 9/21/17.

Packing List and Map of Hawn State Park

Nov 03-05

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with a bleeding disorder between the ages of 7-18 to the Gettin’ in the Game event which will take place November 3 – 5, in Phoenix, AZ. The event will include competitions in baseball, golf and swimming. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf, baseball, and swimming, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). All applications must be submitted by Friday, September 1, 2017.

For more information click here. GHA Scholarship Application !

Nov 04

Trivia Night

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00) to 10:30 p.m.

Reserve your table NOW! Advance registration and payment is REQUIRED

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided    Event Flyer  Click here to register

For more information contact info@gatewayhemophilia.org or call (314) 482-5973.

Dec 17

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP to info@GatewayHemophilia.org or (314) 482-5973

Jan 01

2018

Check out our events for 2018 below!

Mar 07-09

Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques            Register Today

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 26-29

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register and for more information.

 

May 05

Hemophilia Walk

Location: Forest Park, Lower Muny Lot
Forest Park, Carr Ln Dr, St. Louis, MO 63110
9:00 a.m.

 

Registration will open after January 1, 2018

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered.

Jun 06-09

2018 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorder and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2016 Military Theme Camp

Camp Photo

Jul 14-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Registration will open in the spring.

Oct 11-13

NHF’s 70th Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 70th Annual Meeting in Orlando,FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 25-28, 2018.

 

NHF’s 70th Annual Meeting Info