Events

Jul 24-28

WFH 2016 World Congress

Join us for the WFH 2016 World Congress (XXXII International Congress of the World Federation of Hemophilia) in Orlando (FL) July 24-28, 2016. Click here for more information and registration.

 

Aug 18

Wine Tasting Fundraiser

Location: Farotto's Italian Restaurant & Pizzeria
9525 Manchester Rd, St. Louis, MO 63119
6:00 PM to 8:00 PM

tasting-wine

GHA will hold a wine tasting event on Thursday, August 18. All proceeds from this event will benefit our educational scholarship fund for our college age members with a bleeding disorder who are furthering their education. Event Flyer. Please check back for online registration.  

Click here to register. Advance registration -$25, day of registration – $30. 

 

Farottos logo

 

Aug 18-21

Inhibitor Education Summit

inhibitor-summit

The National Hemophilia Foundation is pleased to present two Inhibitor Education Summits this August for people with hemophilia A or B who currently have or once had inhibitors:

  • St. Louis, Missouri (August 18-21, 2016); to register for this meeting click here.
  • New Orleans, Louisiana (August 25-28, 2016); to register for this meeting click here.

These Summits will provide a dynamic weekend of inhibitor-related education alongside other inhibitor families. This program:

  • Is available to anyone with hemophilia A or B who currently has or once had inhibitors
    • Caregivers that live in the same household as the person with an inhibitor (active or tolerized)
  • Provides complimentary travel, hotel accommodations and registration are provided
    • This includes such expenses as tolls, mileage, airfare and hotel accommodations. Some meals will be provided

Sep 17

GHA BBQ

Location: Tower Tee Driving Range
6727 HEEGE RD – Afton, MO 63123
12:00 p.m. to 3:00 p.m.

GHA invites you to come enjoy a day of fun, education, family and friends!!!

Enjoy delicious BBQ, drive some golf balls and get some batting practice & hitting instruction.          Event Flyer

 towertee-logo

Sep 25-02

Gettin’ in the Game Junior National Championship

Location: Phoenix, AZ

 GHA has been invited to send two individuals with bleeding disorders between the ages of 7-18 to the Gettin’ in the Game event which will take place September 30 – October 2, 2016 in Phoenix, AZ. The event will include competitions in baseball and golf and we will be nominating one individual for each of the two competitions. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf and baseball, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA participants must have a bleeding disorder, be between the ages of 7 and 18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). Interested individuals must fill out an application and submit an essay of no more than 500 words on why they are interested in participating. All applications must be submitted by Friday, August 19, 2016.

For more information click here.

Sep 26

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
12:00 p.m. shot gun start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Sep 29-02

Great Plains Region Women with Bleeding and Clotting Disorders Annual Retreat Weekend

Location: Camp Allen
18800 FM 362 Navasota, Texas 77868

YOUR JOURNEY BEGINS HERE!!!    The Great Plains Region Annual Women with Bleeding and Clotting Disorders (WwBCD) Women’s Retreat and Girls Camp is scheduled for Sep 29 – Oct 2, 2016 at Camp Allen in Navasota, Texas.  They will begin accepting registrations in June for this great weekend adventure.  Transportation, lodging, and meals are provided to all attendees.  The only cost to attendees is a small registration fee of $50 per person. Retreat registration will be open to females ages 18 and up who have been formally diagnosed with a bleeding or clotting disorder.  Camp registration will be open to females ages 12 – 17 who have been formally diagnosed with one of the following diagnoses: Von Willebrand’s Disorder, Congenital Thrombophilia, Hemophilia, Platelet Disorder, or Rare Bleeding Disorder.  All attendees must reside in one of the eight states in the Great Plains region (Texas, Louisiana, Oklahoma, Arkansas, Kansas, Missouri, Nebraska, Iowa).  The women’s retreat and girl’s camp are held concurrently on the same property however they will be at different locations on the property.  All girls camp attendees are required to have a female parent or caregiver attend the women’s retreat.  Registration will be done online again this year through CampDoc.  Registration will officially open on June 1st and will close on July 8th.  Space is limited so we encourage all interested females to register early.  Once we reach our capacity, applicants will be put on a waiting list.

The annual event will allow women and girls to participate in several educational sessions, entertaining and relaxing activities, all while enjoying time together and some well earned “me” time.  The weekend will provide the perfect opportunity for rekindling existing friendships as well as creating new ones.

Potential attendee(s) may contact a representative listed below to receive the link to CampDoc for registration purposes as well as receive answers to any questions that they may have.  If you should require any additional information or have any questions/concerns, please feel free to contact Melissa Reifke, Registration & Bleeding Disorder Track Coordinator 281-686-7020 lsc_she2013@yahoo.com.

State Contact: Missouri – Tonya Brown

Nov 05

Trivia Night

Location: Richmond Heights Community Center
8001 Dale Ave, Richmond Heights, MO 63117
7:00 p.m. (doors open at 6:00) to 10:00 p.m.

Reserve your table NOW! Advance registration and payment is REQUIRED

$200 per table of eight ($25/person)

 Beer, soda and snacks provided

Call GHA at 314-482-5973 or info@gatewayhemophilia.org      Event Flyer

Dec 18

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Jan 01

2017

Check out our events for 2017 below!

Jun 07-10

Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

2017 Camp Notaclotamongus

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2012 Camp Staff

2012 Camp Staff