Events

Jun 01

Staying Connected

Location: Stoney Creek
2601 S Providence Road Columbia, Missouri 65203
6:00 p.m.

Speaker – Cazandra MacDonald.

Sometimes family is not capable of understanding the unique issues of living with a bleeding disorder; in this session we will find ways to cope with distanced family members, and discover that our community is a new family willing to take you in.

Being Empowered– Living an empowered life with a bleeding disorder.

Sponsored by 

Jun 07-10

2017 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorder and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2016 Military Theme Camp

Camp Photo

Jul 21-23

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Click here to Register

Click here for a DRAFT Agenda.

Aug 17

Wine Tasting Fundraiser

Location: Farotto's Italian Restaurant & Pizzeria
9525 Manchester Rd, St. Louis, MO 63119
6:00 PM to 8:00 PM

tasting-wine Farottos logo

 

 

GHA will hold a wine tasting event on Thursday, August 17. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

Click here to register.

 

Aug 24-26

NHF’s 69th Annual Meeting

Location: Hyatt Regency Chicago
151 East Wacker Drive Chicago, Illinois, USA, 60601

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 69th Annual Meeting in Chicago, IL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Chicago, IL August 24-26, 2017. Scholarship Application

 

NHF’s 69th Annual Meeting Info

 

Sep 25

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Lunch provided by pappys

Sep 28-01

Empowering Women with Bleeding and Clotting Disorders Annual Retreat

Location: Camp Allen in Navasota, Texas
18800 FM 362 Navasota, Texas 77868

This annual event is through Great Plains Region, allows women and girls to participate in several educational sessions, entertaining and relaxing activities, all while enjoying time together and some well earned “me” time.  The weekend will provide the perfect opportunity for rekindling existing friendships as well as creating new ones.

Transportation, lodging, and meals are provided to all attendees.  The only cost to attendees is a small registration fee of $50 per person. Retreat registration will be open to females ages 18 and up who have been formally diagnosed with a bleeding or clotting disorder.  Camp registration will be open to females ages 12 – 17 who have been formally diagnosed with one of the following diagnoses: Von Willebrand’s Disorder, Congenital Thrombophilia, Hemophilia, Platelet Disorder, or Rare Bleeding Disorder.  All attendees must reside in one of the eight states in the Great Plains region (Texas, Louisiana, Oklahoma, Arkansas, Kansas, Missouri, Nebraska, Iowa).  The women’s retreat and girl’s camp are held concurrently on the same property however they will be at different locations on the property.  All girls camp attendees are required to have a female parent or chaperone attend the women’s retreat. Space is limited so we encourage all interested females to register early.

If you should require any additional information, or have any questions/concerns, please feel free to contact the names below.

Melissa Reifke                                                                         Hannah Somerville

Women’s Retreat Director                                                     Girl’s Camp Director

281-686-7020                                                                          316-665-9370

greatplainswwbcd@gmail.com                                              hdps3594@gmail.com

Oct 01

GHA Membership Meeting

Location: Kilroy's
720 S. 7th Street, St. Louis, MO 63102
11:30 a.m. to 1:30 p.m.

The members of GHA are invited to gather for an update on GHA, education, getting to know one another, and fun while developing community. After the membership meeting registered attendees will receive a complimentary ticket to the Milwauke Brewers / St. Louis Cardinals baseball game.  at 2:15 p.m. Tickets include a voucher for a hot dog & soda at the game. Event Flyer

RSVP by Sep 15 314-482-5973 or info@gatewayhemophilia.org

*This program is for consumers and caretakers of people living with a bleeding disorder within the GHA service area.

Space is limited and tickets will be distributed on a first come first serve basis.

Attendees must attend the membership meeting to receive a complimentary ticket to the baseball game.

Parking will NOT be provided for this event.

Nov 03-05

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with bleeding disorders between the ages of 7-18 to the Gettin’ in the Game event which will take place November 3 – 5, in Phoenix, AZ. The event will include competitions in baseball, golf and swimming. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf, baseball, and swimming, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). All applications must be submitted by Friday, September 1, 2017.

For more information click here.

Nov 04

Trivia Night

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00) to 10:30 p.m.

Reserve your table NOW! Advance registration and payment is REQUIRED

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided    Event Flyer  Click here to register

For more information contact info@gatewayhemophilia.org or call (314) 482-5973.

Dec 17

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP to info@GatewayHemophilia.org or (314) 482-5973