Events

Apr 30-01

Pizza with a Purpose

Bring this flyer,  present it to your server, and CPK will donate 20% of your check to Gateway Hemophilia Association. Purchases include dine in, take out, catering, and beverages. Valid only April 30-May 1, 2016.

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Valid at the following locations:

Creve Coeur- 314.567.7835 – 10590 Old Olive St.

St. Louis Galleria- 314.863.4500 – 1493 St Louis Galleria St

Chesterfield Mall- 636.536.6910 – 284 Chesterfield, City Center Dr,

West County- 314.909.0333 – 109 W. County Center, Spc. 2055

 

May 04

Exploring the Emotional Well-being in the Bleeding Disorders Community

Location: Four Points by Sheraton Fairview Heights
319 Fountains Parkway Fairview Heights, IL 62208
6:00 p.m.

Exploring Emotional Well-being in the Bleeding Disorders Community

Featuring Gladis Murillo, RB, BSN, Nurse Educator Specialist

An overview of mental health disorders, including depression and anxiety, for the general population and for those impacted by a bleeding disorder, including caregivers.   Event Flyer

May 12

Youth Golf Kick off BBQ

Location: Sunset Hills Golf Course
13366 West Watson Road, Sunset Hills, MO 63127
5:30 p.m.

COME AND LEARN A “GREEN LIGHT” SPORT WITH US

Image result for youth golf cartoon

GHA’s free summer youth golf program provides an opportunity for children to learn and participate in a non-contact sport that they can continue to play the rest of their lives.  Golf is one of the National Hemophilia Foundation’s approved sports for children with bleeding disorders.

The golf program will meet twice a week beginning May 12 from 6-7:00 p.m. at the driving range/instruction center at Sunset Hills Golf Course (not the country club).

           BBQ, ORIENTATION AND CLUB FITTING WITH PARENTS

MAY 12 @ 5:30 PM

Questions or to RSVP call (314) 482-5973 or info@gatewayhemophilia.org

Event Flyer

May 21

Women’s Day Out

Location: New Season’s Spa & Salon
1 Ronnies Plaza, St. Louis, MO 63126
9:00 a.m. to 1:00 p.m.

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We would like to treat all the hard working women impacted by bleeding disorders to a day out for some pampering and girl time!

This invitation is for women who are diagnosed with a bleeding disorder, or a direct family member who is affected by a bleeding disorder.  A direct family member may include, a mother, sister, or spouse of a person affected by a bleeding disorder.

We will have appetizers and refreshments available from 10am-1pm. Feel free to come a little early or stay after your appointment for food, friends & relaxation. RSVP with your preferred service & time to Bridget Tyrey at (314) 482-5973 or info@gatewayhemophilia.org. Reservation are required!

DEADLINE FOR REGISTRATION – May 6, 2016

SPACE IS LIMITED – CALL TODAY!

Sponsored by: NCHS Event Flyer

Jun 08-11

Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

2016 Party in the U.S.A. Military Camp

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting. Click here to register!

2012 Camp Staff

2012 Camp Staff

Jun 24-26

Family Education Weekend

Location: Renaissance St. Louis Airport Hotel
9801 Natural Bridge Road St. Louis, MO 63134

As an organization dedicated to the education and advocacy for our community, we decided 21 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

renaissance-st-louis

Registration and Agenda information coming soon!

Jul 21-23

NHF’s 67th Annual Meeting

Location: Gaylord Texan Resort & Convention Center Hotel
6000 W Osceola Pkwy, Kissimmee, FL 34746

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 68th Annual Meeting in Orlando, FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Orlando, FL July 21-23, 2016.

 

NHF’s 68th Annual Meeting Info

GHA’s NHF Scholarship Application

 

Jul 24-28

WFH 2016 World Congress

Join us for the WFH 2016 World Congress (XXXII International Congress of the World Federation of Hemophilia) in Orlando (FL) July 24-28, 2016. Click here for more information and registration.

 

Aug 18

Wine Tasting Fundraiser

Location: Farotto's Italian Restaurant & Pizzeria
9525 Manchester Rd, St. Louis, MO 63119
6:00 PM to 8:00 PM

tasting-wine

GHA will hold a wine tasting event on Thursday, August 18. All proceeds from this event will benefit our educational scholarship fund for our college age members with a bleeding disorder who are furthering their education. Event Flyer. Please check back for online registration.  

Click here to register. Advance registration -$25, day of registration – $30. 

 

Farottos logo

 

Aug 18-21

Inhibitor Education Summit

inhibitor-summit

The National Hemophilia Foundation is pleased to present two Inhibitor Education Summits this August for people with hemophilia A or B who currently have or once had inhibitors:

  • St. Louis, Missouri (August 18-21, 2016); to register for this meeting click here.
  • New Orleans, Louisiana (August 25-28, 2016); to register for this meeting click here.

These Summits will provide a dynamic weekend of inhibitor-related education alongside other inhibitor families. This program:

  • Is available to anyone with hemophilia A or B who currently has or once had inhibitors
    • Caregivers that live in the same household as the person with an inhibitor (active or tolerized)
  • Provides complimentary travel, hotel accommodations and registration are provided
    • This includes such expenses as tolls, mileage, airfare and hotel accommodations. Some meals will be provided

Sep 17

GHA BBQ

Location: Tower Tee Driving Range
6727 HEEGE RD – Afton, MO 63123
12:00 p.m. to 3:00 p.m.

GHA invites you to come enjoy a day of fun, education, family and friends!!!

Enjoy delicious BBQ, drive some golf balls and get some batting practice & hitting instruction.          Event Flyer

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Sep 25-02

Gettin’ in the Game Junior National Championship

Location: Phoenix, AZ

 GHA has been invited to send two individuals with bleeding disorders between the ages of 7-18 to the Gettin’ in the Game event which will take place September 30 – October 2, 2016 in Phoenix, AZ. The event will include competitions in baseball and golf and we will be nominating one individual for each of the two competitions. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf and baseball, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA participants must have a bleeding disorder, be between the ages of 7 and 18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). Interested individuals must fill out an application and submit an essay of no more than 500 words on why they are interested in participating. All applications must be submitted by Friday, August 19, 2016.

For more information click here.

Sep 26

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
12:00 p.m. shot gun start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Nov 05

Trivia Night

Location: Richmond Heights Community Center
8001 Dale Ave, Richmond Heights, MO 63117
7:00 p.m. (doors open at 6:00) to 10:00 p.m.

Reserve your table NOW! Advance registration and payment is REQUIRED

$200 per table of eight ($25/person)

 Beer, soda and snacks provided

Call GHA at 314-482-5973 or info@gatewayhemophilia.org      Event Flyer

Dec 18

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM