Events

Sep 12

GHA BBQ

Location: Tower Tee Driving Range
6727 HEEGE RD – Afton, MO 63123
12:00 p.m. to 3:00 p.m.

GHA invites you to come enjoy a day of fun, education, family and friends!!!

Enjoy delicious BBQ, drive some golf balls and get some batting practice & hitting instruction.            Event Flyer

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Sep 14

Tee off 4 Hemophilia

Location: Quail Creek Golf Club
6022 Wells Rd, St Louis, MO 63128

This golf tournament is the main fundraiser supporting GHA activities. GHA hosts conferences, funds research, and supports political advocacy and the bleeding disorder community. This event helps fund Camp Notaclotamongus, a summer camp for kids affected by bleeding disorders that teaches self-infusion of factor products and provides safe, physical activities. Register 

 

Event Flyer

Sep 27

Fall Membership Meeting

10:00 a.m. to 12:30 p.m.

The members of GHA are invited to gather for an update on GHA, education, getting to know one another, and fun while developing community. This is for families affected by a bleeding disorder. After the membership meeting registered attendees will receive a complimentary ticket to the Milwaukee Brewers / St. Louis Cardinals baseball game.  at 1:15 p.m. Event Flyer

Cards

Oct 01

Using Fitness to Fight Back

Location: Little Hills Winery
710 S Main St, St Charles, MO 63301
6:00 p.m.

Discover how physical fitness can create a powerful defense against injury for people with hemophilia. Learn how to safely utilize fitness components like flexibility, core stability, strength training, and body movements to help prepare your body for a healthy, active lifestyle. Event Flyer

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Oct 01-04

Great Plains Region Women with Bleeding and Clotting Disorders Annual Retreat Weekend

It will be held October 1 – 4, 2015 at Camp Allen in Navasota, Texas.  Transportation, lodging and meals are provided for all attendees.  There is a small registration fee of $50 per person.  We are happy to announce that our registration process is completely electronic this year.  Registration is open to females ages 18 and up who have been formally diagnosed with a bleeding or clotting disorder AND reside in one of the eight states in the Great Plains Region (Texas, Louisiana, Oklahoma, Arkansas, Kansas, Missouri, Nebraska and Iowa).  Registration officially closes August 7, 2015 but space is limited so we encourage applicants to register early.  After we reach our capacity, applicants will be put on a wait list.
 
A typical day at retreat consists of morning educational sessions, and afternoons filled with camp activities, arts & crafts, and wellness sessions.  In the evening, everyone will have fun playing bingo, enjoying ice cream sundaes, and working out Zumba-style.  Saturday night is our big finale and attendees have the option of enjoying a casino night filled with fun and prizes. 
Sincerely, Melissa Reifke
Great Plains Women’s Retreat Planning Committee
281-686-7020

Oct 23-25

Gettin’ in the Game Junior National Championship

Location: Phoenix, AZ

 GHA has been invited to send two individuals with bleeding disorders between the ages of 7-18 to the Gettin’ in the Game event which will take place October 23-24, 2015 in Phoenix, AZ. The event will include competitions in baseball and golf and we will be nominating one individual for each of the two competitions. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf and baseball, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA participants must have a bleeding disorder, be between the ages of 7 and 18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). Interested individuals must fill out an applicationand submit an essay of no more than 500 words on why they are interested in participating. All applications must be submitted by Friday, August 21, 2015.

For more information click here.

Nov 07

Trivia Night

Location: Richmond Heights Community Center
8001 Dale Ave, Richmond Heights, MO 63117
7:00 p.m. to 10:00 p.m. (doors open at 6)

Dec 20

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Jan 01

2016

Check out our events for 2016 below!

Mar 31-02

HFA Symposium

Location: Las Vegas, NV

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Click here for more information

 

Apr 30

Hemophilia Walk

9:00 a.m.

 

 

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Click here to REGISTER – check back in 2016

The day of the walk you may choose the 1 mile or 5k walk/run!

Jun 08-11

Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

2016 Party in the U.S.A. Military Camp

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting. Registration is now closed!

2012 Camp Staff

2012 Camp Staff

Jul 21-23

NHF’s 67th Annual Meeting

Location: Gaylord Texan Resort & Convention Center Hotel
6000 W Osceola Pkwy, Kissimmee, FL 34746

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 68th Annual Meeting in Orlando, FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Orlando, FL July 21-23, 2016.

 

NHF’s 68th Annual Meeting Info

 

Jul 24-28

WFH 2016 World Congress

Join us for the WFH 2016 World Congress (XXXII International Congress of the World Federation of Hemophilia) in Orlando (FL) July 24-28, 2016. Click here for more information and registration.