Events

Feb 03

Bullying Online and Offline

Location: Stoney Creek
2601 S Providence Road Columbia, Missouri 65203
6:00 p.m. to 8:30 p.m.

Bullying can have serious consequences for anyone, but teenagers with a bleeding disorder may feel that they are targets of bullying because of their disorder. This talk provides useful information about recognizing bullying and cyber-bullying, developing ways to respond to bullying, and developing coping skills to feel more confident and self-assured. Click here for event flyer!

Speaker – Mary Kay Thrower, RN

If you would like to attend this program, RSVP by Wednesday, February 1, (314) 482-5973 or Info@GatewayHemophilia.org

Sponsored by: 

Feb 28

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP to info@gatewayhemophilia.org or (314) 482-5973, if you are interested in attending the training or have any questions! Click here to register!

Teen Advocacy Training: “Making a Positive Impression”

The teens will learn about the importance of personal advocacy through a variety of situational discussions. Consider how and when to set boundaries and say ‘No’ as well as advocating for your health at school, at your HTC, and throughout life in general.

Red Tie Challenge

Mar 01

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

MO State Capitol

        Register here for Missouri Advocacy Day

Mar 01-31

National Bleeding Disorders Awareness Month

March has been declared national Bleeding Disorders Awareness Month. Read all about this important designation and how to take the Red Tie Challenge to show your support.

Mar 08-10

Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques            Register Today

Apr 06-09

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

sympo2017-banner

Click here to register and for more information.

 

Apr 17

World Hemophilia Day

Please join us as we raise awareness for hemophilia and honor progress in our community! Click here for more information.

WHD

 

May 05-07

FVII Retreat

CHES (Comprehensive Health Education Services) and the LadyBugs Foundation teamed up in 2012 to present the only national program of its kind for those affected by FVII.
Join us for our sixth annual weekend of education, support, and fun for those affected by FVII deficiency and their families.
Attendance is based upon multiple criteria and at the discretion of Comprehensive Health Education Services.  Please know we make every effort to include the maximum number of participants possible and new attendees receive first preference.

Who can attend? Anyone with a confirmed diagnosis of FVII deficiency and their immediate family.

For a complete list of FAQs, visit FVIIretreat.org or Call: 781.878.8561

May 06

Hemophilia Walk

9:00 a.m.

 

Click here to REGISTER 

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered.

Jun 07-10

2017 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorder and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2016 Military Theme Camp

Camp Photo

Jul 21-23

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Registration will open February 1. Click here for a DRAFT Agenda.

Aug 17

Wine Tasting Fundraiser

Location: Farotto's Italian Restaurant & Pizzeria
9525 Manchester Rd, St. Louis, MO 63119
6:00 PM to 8:00 PM

tasting-wine Farottos logo

 

 

GHA will hold a wine tasting event on Thursday, August 17. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

Click here to register.

 

Aug 24-26

NHF’s 69th Annual Meeting

Location: Hyatt Regency Chicago
151 East Wacker Drive Chicago, Illinois, USA, 60601

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 69th Annual Meeting in Chicagi, IL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Chicago, IL August 24-26, 2017. Scholarship Application

 

NHF’s 69th Annual Meeting Info

 

Sep 25

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Lunch provided by pappys

Nov 04

Trivia Night

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00) to 10:30 p.m.

Reserve your table NOW! Advance registration and payment is REQUIRED

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided    Event Flyer  Click here to register

For more information contact info@gatewayhemophilia.org or call (314) 482-5973.