Events

Jan 15

The Ever-Changing Challenges of a Woman with a Bleeding Disorder

Location: Bartolino's Osteria
2103 Sulphur Ave, St Louis, MO 63139
6:00

Join us for some companionship and education as we discuss being a woman with a bleeding disorder.  Spend time with other women and share experiences and challenges –  any topic is fair game, from periods to childbirth; sexuality to menopause.  Come learn about the many resources available to help empower us to be in control of our Bleeding Disorders and connect with women of the community!

Event Flyer

Jan 28

Home and Self Infusion

Location: Colton's Steak House
2114 N Westwood Blvd, Poplar Bluff, MO 63901
6:30 p.m.

Feb 21

Bowling Party

Location: Brunswick Zone
1254 Dougherty Ferry Rd. Valley Park, MO 63088
12:00 p.m. to 2:00 p.m.

All bowlers will enjoy TWO FREE hours of cosmic bowling,  shoe rental, and refreshments. We will have door prizes and a 50/50 raffle. Space is limited; RSVP by February 16 to info@gatewayhemophilia.org or (314) 482-5973.

Event Flyer

Feb 25-27

Washington Days

NHF’s annual Washington Days empowers individuals in the bleeding disorders community to impact the legislative process.

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Washington Days

Mar 10

Legislative Advocacy Training Dinner

Location: Courtyard by Marriott
3301 Lemone Industrial Blvd., Columbia, MO 65201
7:00 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP by February 25, to info@gatewayhemophilia.org, if you are interested in participating or have any questions!

Event Flyer

Mar 11

Missouri State Lobby Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101

With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

Join us and let our voices be heard!

Become an advocate for yourself and for the entire community. Please contact Bridget with GHA at (314) 482-5973 or info@gatewayhemophilia.org to join us in Jefferson City!

 

Event Flyer                   Register here for Missouri Lobby Day

Mar 26-28

HFA Symposium & GHA FEW

Location: Hyatt Regency St. Louis at the Arch
315 Chestnut Street. Saint Louis, MO 63102

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Symosium

 Click here to register!

Apr 12

Camp Open House

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052
1:00 p.m. to 3:00 p.m.

CAMP PRE-PARTY!

This is the perfect time for future campers to gather for a relaxing and fun camp pre-party at Camp Notaclotamongus. New families interested in our camp will have the opportunity to experience our facility, our staff, activities, and meet us and see what we have to offer your children. Some “experienced” campers will also be there to answer your questions. Lets gear up for the summer ahead. Bring the family, or come alone, but please come! Click here for additional information. 

Please RSVP to GHA at: info@gatewayhemophilia.org Questions?  E-mail or call Bridget at: 314-482-5973

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

May 02

Walk with the Animals

9:00 a.m.

Walk with the Animals

 

 

Click here to REGISTER 

Jun 03-06

Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

2015 Medieval Times Camp

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorders and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2012 Camp Staff

2012 Camp Staff

Aug 13-15

NHF Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 67th Annual Meeting in Dallas, TX, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate in Dallas, TX, August 13-15, 2015.

 

NHF’s 67th Annual Meeting Info

 

Aug 20

Wine Tasting Fundraiser

Location: Villa Farotto's
17417 Chesterfield Airport Rd, Chesterfield, MO 63005
6:00 PM to 8:00 PM

GHA will hold a wine tasting event on Wednesday, August 20. All proceeds from this event will benefit our educational scholarship fund for our college age members with a bleeding disorder who are furthering their education. Event Flyer 

 

Sep 14

Tee off 4 Hemophilia

Location: Quail Creek Golf Club
6022 Wells Rd, St Louis, MO 63128

This golf tournament is the main fundraiser supporting GHA activities. GHA hosts conferences, funds research, and supports political advocacy and the bleeding disorder community. This event helps fund Camp Notaclotamongus, a summer camp for kids affected by bleeding disorders that teaches self-infusion of factor products and provides safe, physical activities. Register 

 

Event Flyer

Nov 07

Trivia Night

7:00 p.m. (doors open at 6) to 10:00 p.m.