Events

Feb 24

CarneyVal 2018

18th Annual Taste of Restaurant Tuesday!
CarneyVal will be held in the magnificent Discovery Ballroom of the Ameristar Casino in St. Charles. Comedians will be your entertainment for the night, with specific performers to be announced soon. Costumes are optional, but encouraged. Please participate in our fantastic live and silent auctions, as well as various raffles throughout the night! Once again, our emcee for the evening will be John Pertzborn and our auctioneer will be Farmer Dave Schumacher.
CarneyVal is Carney’s Kids Foundation’s biggest fundraiser of the year. The Carney’s Kid’s Foundation provides financial support and creates positive exposure for the following local charities that help improve the lives of children:
  • Litzsinger School
  • Delta Gamma Center for Children with Visual Impairments
  • St. Louis Crisis Nursery
  • Foster and Adoptive Care Coalition
  • Eagle’s Wings
  • Ranken Jordan Pediatric Bridge Hospital
  • Art Unleashed
  • Disabled Athlete Sports Association
  • Sherwood Forest
  • Gateway Hemophilia Association
CLICK ON THE IMAGE ABOVE FOR TICKET INFORMATION

Feb 28

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:00 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP to info@gatewayhemophilia.org or (314) 482-5973, if you are interested in attending the training or have any questions! Event Flyer.

Advocacy Training: “Sharing Your Story”

Teen Advocacy Training: “Making a Positive Impression”

The teens will learn about the importance of personal advocacy through a variety of situational discussions. Consider how and when to set boundaries and say ‘No’ as well as advocating for your health at school, at your HTC, and throughout life in general. Red Tie Challenge

Sponsored by:

 

Mar 01

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline was February 2. Please contact Bridget Tyrey at (314) 482-5973 or at Info@GatewayHemophilia.org with any questions.

MO State Capitol

Sponsored by:

Mar 03

Jail or Bail

Location: Farrotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
10:30 a.m. to 3:00 p.m.

Would you Get Locked Up for a Great Cause?

Walk Team Captains or team members will be given a bail amount by a celebrity judge and locked up at Farrotto’s. They will have up to 1 1/2 hours to come up with their bail amount, which raises money for their Walk Team. They will have access to their cell phone and contact list. Donuts, coffee and lunch will be provided to participants being locked up.

Don’t want to be locked up? Come and watch! Farrotto’s will donate 20% of their sales to Gateway Hemophilia Association that day.

Click here to sign up.

Questions call (314) 482-5973 or info@GatewayHemophilia.org

 

Mar 07-09

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Register Today with NHF

Mar 23-25

Women’s Retreat

Location: The Lodge of the Four Seasons
315 Four Seasons Drive Lake Ozark, MO 65049

GHA will host a Women’s Retreat for women 18 and older that are caregivers of a person with a bleeding disorder or have a bleeding disorder themselves. The focus of the conference will be education, personal growth and networking. Sessions will focus on bleeding disorders, treatment options and most importantly relaxation!

Click here for online registration or a paper registration.

Deadline to register is March 1, 2018.

Apr 06

Getting Real: Being a Teen or Young Adult (with a bleeding disorder)

Location: Shakespeare's Pizza
4817, 225 S 9th St, Columbia, MO 65201
6:00 p.m.

Speaker – Joe Schuch, Pfizer

Practical tips and resources presented to help teens and young adults with a bleeding disorder become better self-advocates. Emphasis is placed on discussion of independence, peer pressure, and other considerations specific for teens and young adults. Event Flyer!

Sponsored by 

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 17

World Hemophilia Day “Sharing Knowledge Makes Us Stronger”

Location: TBD
6:00 p.m. to 9:00 p.m.

Please join us as at Science Matters, a family friendly event filled with learning and inspiration. We will raise awareness for hemophilia and honor progress in our community! Email Bridget @ Info@GatewayHemophilia.org to RSVP.

 

WHD

 

 

 

 

 

 

Sponsored by:

Apr 20-21

Teen Retreat

Location: Camp Wartburg
5705 LRC Road Waterloo, IL 62298

GHA will host a Teen Retreat for teens with a bleeding disorder and their siblings, age 13-18. For questions please contact Bridget at (314) 482-5973 or at info@gatewayhemophilia.org.

Teens will enjoy a fun weekend of camp activities, team-building and leadership development with a our guest facilitator from Gutmonkey.

teen-retreat   

Click here to register! Registration deadline is March 1, 2018.

Apr 26-29

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

May 05

Hemophilia Walk & 5K

Location: Forest Park, Lower Muny Lot
#1 Theatre Drive, St. Louis, MO 63112
9:30 a.m. (registration opens at 8:30 a.m.)

 

Click here to register!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered.

Jun 06-09

2018 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorder and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2017 Fairy Tale Theme

Jul 13-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Registration will open May 1, 2018.

Aug 16

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

 

GHA will hold a wine tasting fundraising event on Thursday, August 16. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

Click here to register!

 

Sep 24

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Oct 11-13

NHF’s 70th Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 70th Annual Meeting in Orlando,FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 11-13, 2018.

 

NHF’s 70th Annual Meeting Info

GHA’s Grant Application

 

Nov 03

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED 

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973.