Events

Dec 01

Journey of Factor: A Deeper Dive

Location: Shakespear's Pizza West
3304 W Broadway Business Park Ct, Columbia, MO 65203
6:00 p.m.

This presentation provides a deeper dive on how factor works in the blood clotting process and how factor treatment replaces missing factor VIII or factor IX within this process. Also, the topic of how factor offers options for individualized treatment will be discussed. Event Flyer. Sponsored by   

 

ARJ is partnering with Santa Claus this year to provide families with holiday cheer, crafts, and other goodies during the event.

Sponsored by  Event Flyer!

 

RSVP to info@GatewayHemophilia.org or (314) 482-5973

 

Dec 17

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP to info@GatewayHemophilia.org or (314) 482-5973

Jan 01

2018

Check out our events for 2018 below!

Feb 03

Winter Membership Meeting

Location: Brunswick Zone
1254 Dougherty Ferry Rd. Valley Park, MO 63088
12:30 p.m. to 3:00 p.m.

Members of GHA are invited to gather for a membership meeting. Attendees that attend the membership meeting will receive TWO hours of bowling, shoe rental, pizza, and and afternoon of Fun! This is for families affected by a bleeding disorder. We will have prizes and a 50/50 raffle. Space is limited, RSVP by January 29 to info@gatewayhemophilia.org or (314) 482-5973.

Event Flyer!

Feb 28

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP to info@gatewayhemophilia.org or (314) 482-5973, if you are interested in attending the training or have any questions! Event Flyer.

Advocacy Training: “Sharing Your Story”

Teen Advocacy Training: “Making a Positive Impression”

The teens will learn about the importance of personal advocacy through a variety of situational discussions. Consider how and when to set boundaries and say ‘No’ as well as advocating for your health at school, at your HTC, and throughout life in general.

Red Tie Challenge

Mar 01

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline is January 27, 2018. Please contact Bridget Tyrey at (314) 482-5973 or at Info@GatewayHemophilia.org with any questions.

MO State Capitol

        Register here for Missouri Advocacy Day

Mar 07-09

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Click here to apply for GHA’s hotel scholarship. GHA’s scholarship is due Friday, December 29, 2017. First time attendees will receive priority.

Register Today with NHF

Mar 23-25

Women’s Retreat

Location: The Lodge of the Four Seasons
315 Four Seasons Drive Lake Ozark, MO 65049

GHA will host a Women’s Retreat for women 21 and older that are caregivers of a person with a bleeding disorder or have a bleeding disorder themselves. The focus of the conference will be education, personal growth and networking. Sessions will focus on bleeding disorders, treatment options and most importantly relaxation!

Registration will open January 1, 2018

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 26-29

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register and for more information.

 

May 05

Hemophilia Walk

Location: Forest Park, Lower Muny Lot
Forest Park, Carr Ln Dr, St. Louis, MO 63110
9:30 a.m. (registration opens at 8:30 a.m.)

 

Registration will open after December 15, 2017

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered.

Jun 06-09

2018 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

The Mission of the annual Gateway Hemophilia Association summer camp is to provide campers with bleeding disorders and carriers of bleeding disorders a safe camping environment to learn about their bleeding disorder and socialize with other campers who relate to their medical needs while teaching them to be future leaders of our camp and community by stretching their perceived limitations, all the while increasing their self-esteem.  In collaboration with the John D. Bouhasin Center for Bleeding and Thrombotic Disorders and the Hematology/Oncology Clinic at St. Louis Children’s Hospital, campers will receive onsite medical care and education related to bleeding disorders in a traditional camp setting.

2016 Military Theme Camp

Camp Photo

Jul 13-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Registration will open May 1, 2018.

Aug 16

Wine Tasting Fundraiser

6:00 PM to 8:00 PM

tasting-wine

 

 

GHA will hold a wine tasting fundraising event on Thursday, August 16. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

Registration will open in 2018.

 

Oct 11-13

NHF’s 70th Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 70th Annual Meeting in Orlando,FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 11-13, 2018.

 

NHF’s 70th Annual Meeting Info

GHA’s Grant Application

 

Nov 03

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED 

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973.