Events

Jun 25

Youth Golf Lessons

Location: Quail Creek Golf Course
6022 Wells Rd., St. Louis, MO 63128
6:00 p.m. to 7:00 p.m.

COME AND LEARN A “GREEN LIGHT” SPORT WITH US

GHA’s free summer youth golf program provides an opportunity for children to learn and participate in a non-contact sport that they can continue to play the rest of their lives. The golf program will meet for four weeks on Mondays and Thursdays 6:00 – 7:00 p.m. at Quail Creek. Our goal is that the children who participate in the summer youth golfing program will develop a keen interest in the game and are challenged to increase their skills.  We encourage them to develop a special bond with their teammates and the program mentors that will be valuable for the rest of their lives.  Through this program, we hope to instill an interest in a safe and challenging sport that is deemed safe for them.  Golfing skills also open the door for many college scholarship programs.

Contact info@gatewayhemophilia.org if you are interested in participating or have any questions!

Jun 28

Youth Golf Lessons

Location: Quail Creek Golf Course
6022 Wells Rd., St. Louis, MO 63128
6:00 p.m. to 7:00 p.m.

COME AND LEARN A “GREEN LIGHT” SPORT WITH US

GHA’s free summer youth golf program provides an opportunity for children to learn and participate in a non-contact sport that they can continue to play the rest of their lives. The golf program will meet for four weeks on Mondays and Thursdays 6:00 – 7:00 p.m. at Quail Creek. Our goal is that the children who participate in the summer youth golfing program will develop a keen interest in the game and are challenged to increase their skills.  We encourage them to develop a special bond with their teammates and the program mentors that will be valuable for the rest of their lives.  Through this program, we hope to instill an interest in a safe and challenging sport that is deemed safe for them.  Golfing skills also open the door for many college scholarship programs.

Contact info@gatewayhemophilia.org if you are interested in participating or have any questions!

Jul 13-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Registration is now closed. 

Jul 14

Blood Drive

Location: DoubleTree by Hilton Hotel St. Louis - Chesterfield
16625 Swingley Ridge Rd, Chesterfield, MO 63017
8:00 a.m. to 11:30 a.m.

Click here to sign up for an appointment at FEW to donate blood.

Aug 16

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

 

GHA will hold a wine tasting fundraising event on Thursday, August 16. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Sep 24

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Sep 28

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with a bleeding disorder between the ages of 7-18 to the Gettin’ in the Game event which will take place September 28-30, in Phoenix, AZ. The event will include competitions in baseball, golf and swimming. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf, baseball, and swimming, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). All applications must be submitted by Wednesday, August 1, 2018.

For more information click here.

To apply for the Gettin’ in the Game Junior National Championship click here.

Sep 29-30

Trails to Healthy Living (for ages 18-25)

Combine nature and movement to promote a healthy balance between physical, mental, and emotional well-being, while utilizing the benefits of fitness, nutrition, & Stress management. This overnight hike is for young adults with a bleeding disorder ages 18-25.

Trails to Healthy Living is a back-country experience that uses backpacking to introduce the topics of movement, nutritional awareness, and mental fortitude. What we eat, how we move, the way we feel; it’s all connected.

Registration will open June 1.

Sponsored by:

Oct 11-13

NHF’s 70th Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 70th Annual Meeting in Orlando,FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 11-13, 2018.

 

NHF’s 70th Annual Meeting Info

GHA’s Grant Application

 

Nov 03

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Dec 20

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP Deadline 12-10-18 to info@GatewayHemophilia.org or

(314) 482-5973

Jan 01

2019

Check out our events for 2019 below!

Mar 26-27

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Register Today with NHF

Apr 04-07

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

Jun 05-08

2019 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.Camper Packing List.

2019  Camp Theme – Wild West