Events

Apr 22

Camp Open House

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052
11:00 a.m. to 12:00 p.m.

CAMP PRE-PARTY!

This is the perfect time for future campers to gather for a relaxing and fun camp pre-party at Camp Notaclotamongus. New families interested in our camp will have the opportunity to experience our facility, our staff, activities, and meet us and see what we have to offer your children. Some “experienced” campers will also be there to answer your questions. Lets gear up for the summer ahead. Bring the family, or come alone, but please come! Camp Open House Flyer!

Please RSVP to GHA at: info@gatewayhemophilia.org Questions?  E-mail or call Bridget at: 314-482-5973

Apr 23

Kendra Gives Back Fundraiser

Location: Kendra Scott at Plaza Frontenac
1701 S. Lindbergh Blvd., St. Louis, MO 63131
5:00 to 8:00 p.m.

Kendra Scott is hosting another Shopping Party to benefit GHA! Enjoy sips of wine, champagne, and sweet treats while you shop! 20% of all proceeds will benefit GHA!

Not in St. Louis? You can make your purchase over the phone during the event and 20% will still go to GHA! Call Kendra Scott 314-266-7610

*online orders will not count towards the fundraiser, so be sure to call!

Apr 26-29

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

Apr 27

My Horse Saved The Farm

7:30 p.m.

 

Tickets for the 2018 performances are on sale NOW!

Tickets are $25 (includes snacks, beer & wine)

$20 of every ticket sold directly benefits Gateway Hemophilia Association

For tickets for this performance, please contact Trudy Stringer at (314) 293-9920 or trufanofabd@yahoo.com

May 05

Hemophilia Walk & 5K

Location: Forest Park, Lower Muny Lot
#1 Theatre Drive, St. Louis, MO 63112
9:30 a.m. (registration opens at 8:30 a.m.)

 

Click here to register!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered.

May 10

Von Willebrand Disease

Location: Maggiano's Little Italy
2 The Boulevard St Louis, Richmond Heights, MO 63117
6:00 p.m.

This program that explores the background of Von Willebrand disease, the difference between Von Willebrand disease types, and treatment options available to those with Von Willebrand disease.

Speaker:Virginia Kraus – Grifols Nurse Educator

RSVP by 5/7 to jmcnamee@gatewayhemophilia.org

May 12

Hemophilia Carriers – Women Who Bleed

Location: Sister Tea House
505 Main St, Fenton, MO 63026
11:00 a.m.

Women’s Group Program!

RSVP to info@GatewayHemophilia.org by May 7.

Speaker: Jessica Walker, RN, BSN Clinical Support Specialist

Sponsored by:

May 17

Camp Clean Up Day

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052
8:30 a.m.

Join us at Living Well Village to help clean up camp for GHA’s campers.

Please email Bridget at info@GatewayHemophilia.org or (314) 482-5973 if you would like to volunteer.

May 18

Expecting the Unexpected: Emergencies Happen

Location: Bella Italia
20 North Spanish Cape Girardeau, MO 63701
6:00 p.m. to 8:00 p.m.

Bleeding disorders can impact how you respond to emergencies, such as accidents, trauma, or natural disasters. This program will help you and your family to develop an emergency plan that’s right for you.
Speaker: April Littrell

RSVP to jmcnamee@gatewayhemophilia.org

Sponsored by:

May 24

BBQ, Orientation & Club Fitting with Parents

Location: Quail Creek Golf Club
6022 Wells Road St. Louis, Missouri 63128
5:30 p.m.

COME AND LEARN A “GREEN LIGHT” SPORT WITH US

Speake – TBD

GHA’s free summer youth golf program provides an opportunity for children to learn and participate in a non-contact sport that they can continue to play the rest of their lives.  Golf is one of the National Hemophilia Foundation’s approved sports for children with bleeding disorders.

The golf program will meet twice a week for six weeks in the summer from 6-7:00 p.m. at the driving range/instruction center at Sunset Hills Golf Course (not the country club).

The program is open to children ages 5-17 with a bleeding disorder and their siblings. Golf equipment is not required nor is previous experience with golf. The PGA Professional instruction will take place at Sunset Hills Golf Course.

RSVP to info@GatewayHemophilia.org or (314) 482-5973

Jun 06-09

2018 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community. To register click here . If registering a Leader In Training age 16-18, click here!

2017 Fairy Tale Theme

Jul 13-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road Chesterfield, MO 63017

As an organization dedicated to the education and advocacy for our community, we decided 22 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

 

Registration will open May 1, 2018.

Aug 16

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

 

GHA will hold a wine tasting fundraising event on Thursday, August 16. All proceeds from this event will benefit our educational scholarship fund for our members with a bleeding disorder who are furthering their education. 

Click here to register!

 

Sep 24

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Sep 29-30

Trails to Healthy Living (for ages 18-25)

Combine nature and movement to promote a healthy balance between physical, mental, and emotional well-being, while utilizing the benefits of fitness, nutrition, & Stress management. This overnight hike is for young adults with a bleeding disorder ages 18-25.

Trails to Healthy Living is a back-country experience that uses backpacking to introduce the topics of movement, nutritional awareness, and mental fortitude. What we eat, how we move, the way we feel; it’s all connected.

Registration will open June 1.

Sponsored by:

Oct 11-13

NHF’s 70th Annual Meeting

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s 70th Annual Meeting in Orlando,FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 11-13, 2018.

 

NHF’s 70th Annual Meeting Info

GHA’s Grant Application

 

Nov 03

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED 

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973.

Jan 01

2019

Check out our events for 2019 below!

Mar 26-27

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Register Today with NHF