GHA Events Calendar

Events

Aug 21

Making the Grade

Location: Pan D' Olive
1603 McCausland Ave., St. Louis, MO 63117
6:00 PM to 9:00 PM

This program will help you open the lines of communication with your child’s school, help identify roles and responsibilities to help manage your child’s health, and understand laws that ensure students with a bleeding disorder have equal access to education.

Click HERE for an event flyer!

Sponsored by:

RSVP to jmcnamee@gatewayhemophia.org

Sep 22

GHA BBQ

Location: Swing-A-Round Fun Town
335 Skinker Fenton, MO 63026
12:00 p.m. to 3:00 p.m.

GHA invites you to come enjoy a day of fun, education, family and friends!!!

Enjoy delicious BBQ, play miniature golf, Bumper cars, batting cages, and receive batting practice & hitting instruction from Gettin’ in the Game athlete, Pete Dyson.       

Click HERE for an event flyer!

 

Sponsored by:

RSVP to jmcnamee@gatewayhemophia.org

Sep 24

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

Sep 28

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with a bleeding disorder between the ages of 7-18 to the Gettin’ in the Game event which will take place September 28-30, in Phoenix, AZ. The event will include competitions in baseball, golf and swimming. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf, baseball, and swimming, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). All applications must be submitted by Wednesday, August 1, 2018.

For more information click here. Registration closed on August 1.

Oct 06

GHA Teen and Young Adult Day Hike

Location: Babler State Park
800 Guy Park Dr, Wildwood, MO 63005
9:00 a.m.

Click here for a map of Babler State Park

GHA’s Teen group and young adults will participate in an outdoor hike at Babler Memorial State park. This program is open for teens and young adults 16-25 with a bleeding disorder. They may also bring one person to hike with them.

Please wear proper clothes and shoes for hiking. Check the weather prior to the hike to prepare. Lunch, bottled water, and snacks provided. Questions contact Bridget at info@gatewayhemophilia.org or (314) 482-5973. RSVPs are required no later than 10/1.

Oct 11-13

70th NHF Bleeding Disorders Conference

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Orlando,FL, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 11-13, 2018.

 

NHF’s Bleeding Disorders Conference Info

GHA’s grant application closed August 1.

 

Oct 20

GHA Fall Membership Meeting

Location: Stuckmeyers Farm
249 Schneider Drive Fenton, MO 63026
10:00 a.m. to 12:00 p.m.

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. Event also includes snacks, a hayride, and a small pumpkin. Event Flyer!

Exhibit Booths 10:00     Light Breakfast 10:30     Membership Meeting 11:00

 

RSVP by October 6 (314) 482-5973 or to jmcnamee@gatewayhemophia.org

 

 

 

 

Nov 03

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!

Nov 09-11

Being Visible: Women with Hemophilia:

Location: Amway Grand Hotel, Grand Rapids, Michigan
187 Monroe Ave NW, Grand Rapids, MI 49503
This conference is an opportunity for women who have been diagnosed with hemophilia A or B, or carriers who are symptomatic.

The Hemophilia Foundation of Michigan (HFM) with financial support provided by Bioverativ, A Sanofi Company, and the Indiana Hemophilia and Thrombosis Center, Inc. (IHTC) will host this national conference.

 

Women who are eligible to join us at this inaugural conference will experience an amazing weekend learning from health care experts, and have opportunities to connect with other attendees who each bring their own unique wisdom and experience of living with hemophilia.

All interested participants are asked to APPLY for admittance to this conference starting August 21, 2018. There is availability for approximately 110 women and girls age 16 and older across the United States, diagnosed with mild, moderate or severe hemophilia A or B, or those who are symptomatic carriers for hemophilia A or Bto attend.

There is no charge for this weekend; transportation costs, hotel, and meals will be provided.

Current Conference Faculty

click here to see the most current sessions:

Questions? Please contact Patrice Thomas, HFM Program Services Director

734-544-0015, pthomas@hfmich.org

Dec 20

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP Deadline 12-10-18 to  jmcnamee@gatewayhemophia.org or

(314) 482-5973

Jan 01

2019

Check out our events for 2019 below!

Mar 27-29

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Register Today with NHF

Apr 04-07

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

May 04

Unite for Bleeding Disorders Walk & 5K

Location: Forest Park, Lower Muny Lot
#1 Theatre Drive, St. Louis, MO 63112
9:30 a.m. (registration opens at 8:30 a.m.)

 

Registration will open in December!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Jun 05-08

2019 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.Camper Packing List.

2019  Camp Theme – Wild West

Jul 12-14

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.