The Gateway Hemophilia Association is a not-for-profit 501(c) (3), community based organization, dedicated to the advocacy, education and support of families affected by bleeding disorders. We have been serving families since 1969 in southern Illinois and eastern Missouri.
One of our most popular programs is Family Education Weekend (FEW), the only program of its kind in the Greater St. Louis area. It provides those affected by bleeding disorders an opportunity to catch up on the latest trends in the bleeding disorders community while meeting other local families that are experiencing some of the same health issues. It helps them to become more knowledgeable about the disorder and to develop a stronger support system that benefits the emotional health of individuals.
FEW will take place July 13 – 15, 2018 at The Doubletree Chesterfield, 16625 Swingley Ridge Road, Chesterfield, MO 63017. GHA expects approximately 200 people to attend and there will be activities planned for both adults and children. This year’s program will include an exhibit hall showcasing several Manufacturer and Specialty Pharmacy companies that cater to the bleeding disorders community. The agenda will have sessions dealing with disclosing a bleeding disorder, Alternative and New Treatments, Transitioning Your Youth, Nutrition, Dental Health, Hepatitis C Update, school issues, and multiple round-table discussions. In addition, there will be sessions that are specific to young adults, women with bleeding disorders, teens, and aging well with a bleeding disorder. There is also children’s programs for age birth to 18 years.
To be eligible to attend the FEW conference you must meet one of the following criteria:
- Diagnosed with hemophilia, Von Willebrand Disease or another bleeding disorder
- Diagnosed as a carrier of hemophilia or another bleeding disorder
- Caregiver of a person with a bleeding disorder
GHA will provide scheduled meals and lodging for GHA members that live within the GHA service area, which includes southern Illinois and eastern Missouri. For more information contact GHA at (314) 482-5973. Registration will open April 1, 2018.
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