Gateway Hemophilia NewsSAVE THE DATEJanuary 24th, 2012 March 30-31, 2012 – Hemophilia Federation of America Symposium 2012. “Embracing Our Future Through Advocy, Fitness and Technology.” Marriott Santa Clara, 2700 Mission College Blvd., Santa Clara, CA 95054. Register on-line: www.hemophiliafed.org Posted in Events Gene Therapy Trial for Hemophilia B Shows Promising ResultsJanuary 4th, 2012 The first evidence of success in gene therapy for Hemophilia B was published by the New England Journal of Medicine. Six patients with severe Hemophilia B responded to injections of a normal factor IX gene. Read more here. Posted in Uncategorized Clinical TrialsJanuary 4th, 2012 Want to know more about clinical trials? Find out what kind of trials are being conducted now and planned for the future at www.clinicaltrials.gov. Click here for those relating specifically to hemophilia. Posted in Uncategorized RecallsJanuary 4th, 2012 To be notified directly about the latest recall or withdrawal of recombinant and plasma products, please sign up for the Patient Notification System (PNS). The system is confidential and time sensitive. It is administered by an independent third-party organization and is free of charge. To enroll in the PNS, please go online at http://www.patientnotificationsystem.org/ or call 1-888-UPDATE-U (1-888-873-2838). Posted in Uncategorized Learn About InhibitorsJanuary 4th, 2012 Inhibitors can be a serious problem for people with bleeding disorders. Inhibitors are a type of antibody produced by the body’s immune system in response to factor concentrate. By neutralizing the effect of the factor product, they can prevent the formation of blood clots. Read more …. Posted in Uncategorized Let’s Cook!November 16th, 2011 With the holidays here, we are all planning that favorite dish to serve our family and friends. Why not share it with your GHA family? We are still looking for recipes for soups, sauces, salads, appetizers, desserts and entrees. We can’t finish our cookbook without your help. Please share your delicious family recipes with us by sending them to info@gatewayhemophilia.org. Send as many as you want! It will be so yummy! Posted in Uncategorized GHA’s Annual Holiday PartyNovember 9th, 2011 What better place to have a holiday party than the Magic House! Join us on December 11 from 6-8 p.m. for cookies, Santa, and loads of fun at the Magic House. To R.S.V.P., call the office: 314-482-5973. Posted in Uncategorized VolunteerOctober 27th, 2011 Volunteers are one of the most important elements in a successful community organization. At GHA, volunteers are actively involved on our board and on our committees for the many activities offered to our Community each year. Make 2012 your year of involvement and commitment to GHA. Call today to see how you can be a part of this vibrant and essential community organization. 314-482-5973 Posted in Uncategorized Traveling During the Holidays?October 27th, 2011 Find an HTC located near your holiday destination by checking the CDC’s website, http://www.cdc.gov/ncbddd/hemophilia/HTC.html. You can find hemophilia treatment centers, search for the names and contact information of treatment centers and staff, create and save lists, print mailing labels and send emails. Posted in Uncategorized Games to PlayOctober 26th, 2011 The World Federation of Hemophilia (www.wfh.org) has a section with games for young people (Memory Game, Web Book, Find the Factor). It is called Hemoaction! Your Hemophilia Adventure. To access the site, click on www.hemoaction.org. Posted in Uncategorized |
|