Archive for January, 2012SAVE THE DATETuesday, January 24th, 2012 March 30-31, 2012 – Hemophilia Federation of America Symposium 2012. “Embracing Our Future Through Advocy, Fitness and Technology.” Marriott Santa Clara, 2700 Mission College Blvd., Santa Clara, CA 95054. Register on-line: www.hemophiliafed.org Posted in Events Gene Therapy Trial for Hemophilia B Shows Promising ResultsWednesday, January 4th, 2012 The first evidence of success in gene therapy for Hemophilia B was published by the New England Journal of Medicine. Six patients with severe Hemophilia B responded to injections of a normal factor IX gene. Read more here. Posted in Education Clinical TrialsWednesday, January 4th, 2012 Want to know more about clinical trials? Find out what kind of trials are being conducted now and planned for the future at www.clinicaltrials.gov. Click here for those relating specifically to hemophilia. Posted in Education RecallsWednesday, January 4th, 2012 To be notified directly about the latest recall or withdrawal of recombinant and plasma products, please sign up for the Patient Notification System (PNS). The system is confidential and time sensitive. It is administered by an independent third-party organization and is free of charge. To enroll in the PNS, please go online at http://www.patientnotificationsystem.org/ or call 1-888-UPDATE-U (1-888-873-2838). Posted in Education Learn About InhibitorsWednesday, January 4th, 2012 Inhibitors can be a serious problem for people with bleeding disorders. Inhibitors are a type of antibody produced by the body’s immune system in response to factor concentrate. By neutralizing the effect of the factor product, they can prevent the formation of blood clots. Read more …. Posted in Education |
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