Hemophilia Treatment Centers

HEMOPHILIA TREATMENT CENTERS (HTCS)
There are approximately 141 hemophilia treatment centers in the United States that offer comprehensive medical care to people with coagulation disorders. The concept of a Hemophilia Treatment Center is having one facility where comprehensive hemophilia care takes place. Care providers treat the whole person and are a great resource to both the patient and their family. They look at every aspect of care including physical, emotional, psychological, educational, financial, and vocational needs. Members of the care provider team include:

  • Hematologists – physicians specializing in blood disorders
  • Nurses – medical specialists in hemophilia care
  • Social Workers -specialists who assist with the issues of daily living, such as adjusting to hemophilia and locating resources for insurance or financial needs
  • Physical Therapists – specialists in activity, exercise, and rehabilitation
  • Orthopedic Specialist – physician specializing in disorders of the bones and joints

The John Bouhasin Center for Children with Bleeding Disorders

Cardinal Glennon Children’s Medical Center
St. Louis University Department of Pediatrics
1465 South Grand Blvd.
St. Louis, MO 63104

HTC 734, Great Plains Region

Phone: (314)577-5332 Fax: (314)577-5309

After Hours: (314)577-5600 Request the Hemophilia doctor on call to be paged

Contacts:
John Puetz MD and Chris Hugge MD Pediatric Hematologist
Lydia Johnson RN Nurse Coordinator

Saint Louis University Center for Bleeding and Thrombotic Disorders

Hemophilia Treatment Center, Adult Program
St. Louis University Hospital, West Pavillion
3635 Vista Avenue, 3rd Floor, Hem/Onc
St. Louis, MO 63110

HTC 735, Great Plains Region

Phone: (314) 577-6056 Fax: (314)977-1190

After Hours: (314)577-8000 Ask the hospital operator to immediately page the Hemophilia Nurse Coordinator or the on call physician.

Contacts:
John Richart, MD, Director
Nurse Coordinator: Azadeh Golkar, RN, MSN, FNP-C

Saint Louis Children’s Hospital

One Children’s Place

St. Louis, MO 63110

HTC 738, Great Plains Region

Phone: (314)454-6018 Fax: (314)286-2892

After Hours: (314) 454-6000 Ask for hematologist/resident on call

Contacts:

David Wilson, MD, PhD., Pediatric Hematologist

Nurse Coordinator: Angie Olson, BSN

Washington University Center for Bleeding & Blood Clotting Disorders-Adult Program

660 South Euclid Avenue Campus Box 8125
St. Louis, MO 63110

HTC 737, Great Plains Region

Phone: (314)362-7216 Fax: (314)362-8813

After Hours: (314) 747-3536 Ask for hematologist/resident on call

Contacts:

Elaine Majerus, MD, PhD., Medical Director

Adult Hematologist:  Morey Blinder, M.D.

Nurse Coordinator: Ruth Geronsin, BSN

Adult Nurse Practitioner:  Kate Rogers, ANP

Lynn Golec, APRN, Nurse Practitioner
Sue Pardeshi, RN, Nurse Coordinator

Washington University HTC

Missouri Hemophilia Treatment Center

University of Missouri Health Care
One Hospital Drive-DC058.00
Columbia, MO 65212

HTC 736, Great Plains Region

Phone: (573) 882-3961 Fax: (573) 884-4277

Adults After Hours: (573) 808-8288 Ask for the hemophilia nurse to be paged

Pediatrics After Hours: (573) 882-4141 Ask for the hemophilia nurse to be paged

Bleeding & Clotting Disorders Institute

9128 N. Lindbergh Drive
Peoria, IL 61615

HTC 557, Region V (West)

Phone: (309) 692-5337 or (877) 335-2234 Fax: (309) 693-3913

email: info@ilbcdi.org     web: www.ilbcdi.org

Adult After Hours: (309) 677-6085 Ask for Dr. Tarantino, or the physician on call.
Pediatric After Hours: (309) 677-6085 Ask for Dr. Tarantino, or the physician on call.

Contacts:

Michael D. Tarantino, MD – Medical Director

Nurse Coordinator: Dana Stephens, RN, MS, CPNP – Nurse Practitioner

If you need information about a Hemophilia Treatment Center in another area, please visit the Center for Disease Control’s web site: www.cdc.gov/ncbddd/hemophilia/HTC.html